Sixth Day Morning - Consulting with Dr Rhamani

Meeting with Dr. Rhamani

Glad Dr. Rhamani came in the morning, last morning I had 2 fainting spell, so we decided that we should stay in the hospital for more observation and work out a plan. 

After looking through the various options available by the hospital.

  1. Go on the medicine that numb the pain but the fainting don’t seems to stop. Also the heart stop, while fainting. The first documented fainting recorded a heart stop or 14 sec, the second documented on the Fifth day morning 28 sec. So it looks like it is getting longer. 
  2. Go on medicine and put a Heart Pacer. That would help to trigger the heart to beat during the fainting. However, we need to handle it with care if we are need any signal that can scrabble the programming in the Pacer. Another consideration is a Pacer that can go for MRI after it is switch off. 
  3. Go for Gama radiation treatment by Dr David Choy, Neurosurgery Specialist. We are not sure of the cost. So some planning needed to be done.
Dr. Rhamani is going to discuss with Dr. Ng and Dr. David Choy
It seems I have not much choice, as the Heart Pacer and the Medicine are not a cure to the solution of the Glossopharyngeal Neuralgia problems, to go for the Gama treatment.

So the logistic, cost and the amount of time needed is important for planning. This the three doctors will discuss and inform me of their arrangement. 

Scenarios
  1. Do the Heart Pacer first, it is a 2 Hour surgery, according to Dr. Ng the Cardiologist. Then wait to get the Gama Treatment.
  2. Do the Heart Pacer, go home and them come back for the Gama Treatment, which is in Mount E
I suspect they would advice on option 2. Unless the Gama Dr. can start quickly. 






Eating

The Swallowing is getting very difficult. I can only take paste like or creamy food, each time small mouth and swallow slowly with the head bout and the tongue stationary. It takes more than 30 minute to eat. I had to be very careful swallowing the pills too, especially the Nerve vitamin. Now I chew the vitamin pill before I swallow it. Some will be stuck in my molar.

The last fainting

The paint is like a laceration, then fainted and recover.
  1. First is a needle like prick, developed into a patch of laceration of oval shape of about 2cm x 3 cm below the side of the jaw. 
  2. I try to breath calmly, it spin, lost it.
  3. I came back, felt some vibration, daze, space out, held on to the side of the bed rail, trying to gain awareness. Hardly I have any visual except a dreamy effect.
  4. The eyes could now see stars and the bed, slowly the stars clear and I now know I am in the hospital.
  5. The heart is beating hard, faster than normal. 
  6. No sweat, perhaps due to the air-conditioning.

With Dr. Ng

“Yes, I know your heart stopped again yesterday morning. I know and my reply is OK”, a matter of fact, Dr. Ng. When I asked him about my second heart stops, this was his response, direct, to the point and he show me the graph where my heart stopped.

“No worry, the heart stops will always come back beating”, Dr. Ng
However, somehow I just feels that something else is going to be affected, if my heart keep stopping and restarting. Even a computer that hangs and restart, soon it hangs totally and need a new reformatting and reloading. 

I met Dr. Ng, a jovial man with occasional matter of fact sarcasm, but I like him. I suspect he is a Hainanese. He was also one of the first to suggest Glossopharyngeal Neuralgia through my descriptions and the diagnose of the first documented heart stop of 14 sec during the fainting trigger by talking to a EEG specialist. 

He mentioned that there is also a temporary pacer that goes through the throat. There seems not a way to go when my throat and tongue is the issue. Run away nerve I would call it. He mentioned that his Pacer can go for MRI scan and the best. The cost is 25k plus




Meeting with Dr. Choy

He explained the procedure:
  1. Frame put on the head with 4 screws to stabilize it. (Looks like I have to cut my hair.)
  2. MRI scan, they get the 3D data 
  3. Then the Gama rays. 
Only Wednesday is available.
So we decided to have a go on this Gama radiation to weaken the nerve. 

He advice that it is not immediate effect so it takes a little time to take effect. He will target the Glossopharyngeal nerve but it may have some effect on other nerve, the 7 and 8 nerve related to balancing and earring. 

The cost is 40 plus K according to him.


We will prepare for Wednesday. 














 

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